[OPLINLIST] Childhood eating disorder...

Wed Feb 29 11:59:27 EST 2012

Barb,

My child has a type of illness known as an EOS disorder.  Many children with this type of disorder are fed through feeding tubes (mine is not).  You can search for information about it at the APFED foundation (www.apfed.org) as they will probably have support materials about feeding tubes and those living with them.  In addition, there are a variety of other conditions that cause children to need feeding tubes and there are a variety of support groups on line for them.  There are a couple of children's book that discusses the issues, also - for example, http://www.mitoaction.org/gtube_book?gclid=CNrDjpvTw64CFQFeTAodqiFwUQ

Many children who have feeding tubes have to have speech and swallowing therapy to learn how to eat regular food correctly.  Honestly, this child needs to be under the care of a professional therapist and nutritionist to help deal with the very real issues that come from needing a feeding tube.

To the best of my knowledge, there are no real good books out there that deal with the issue you are inquiring about.  Can you be more specific about the age of the son in question?  How young is young?  I can put out a request for information on a support forum I know of, but more information about age would be helpful.

Sincerely,
Karen

Karen Jensen, MLS
Teen Librarian's Toolbox
www.teenlibrarianstoolbox.blogspot.com

________________________________
 From: "Jones, Abigail" <Abigail.Jones at osumc.edu>
To: "'oplinlist at lists.oplin.org'" <oplinlist at lists.oplin.org> 
Sent: Wednesday, February 29, 2012 11:25 AM
Subject: Re: [OPLINLIST] Childhood eating disorder...

Please forgive any double posting. I received an auto message saying the following did not go through to all OPLIN list members. 

Hi Barb, 
From the info you shared with us it sounds as if the dilemma is a result of tube feeding, not a genetic condition in itself. One way to look for info on this kind of topic - where the
patron does not give you a specific diagnosis - is to search for info about the original medical situation. The son had a feeding tube in childhood (although we don't know how long ago that was). Look for information about "feeding tubes" and "children".  
I second Lynne Welch's suggestions of MedlinePlus and NetWellness (folks can search their Q & A archive or submit an anonymous question that will be answered.) Another way to go is to
use Google Advanced and limit the domain to .edu. You'll find patient education from academic medical centers this way.  
Most overview articles will discuss risks as well as prognosis for coping after the tube is removed. Kids who have tubes often have them as babies or in toddler hood so a major challenge
is to help them transition to oral feeding while at the same time learn how to eat solid food, which they may never have tasted. I've often seen the phrase "encouragement feeding" in regard to this process and it involves the child learning what feeling full
is like when eating normally, i.e. not on a tube. Of course, the family should be encouraged to ask their doctor for a referral to a licensed therapist/nutritionist who can assist the child. 
If any listers want assistance with such specialized health info questions, please let me know. Our library is a branch of the academic health sciences library here at OSU, but we are
open to the public and happy to help everyone. 
All the best,  
Abigail 
Abigail Jones, MLIS, MA
Consumer Health Librarian | Library for Health Information
The Ohio State UniversityWexner Medical Center
Atrium | 450 W 10th Ave | Columbus, OH 43210
ph: 614.293.3707 | fax: 614.293.8921
http://go.osu.edu/lhi | http://twitter.com/libhealthinfo 

From: oplinlist-bounces at lists.oplin.org [mailto:oplinlist-bounces at lists.oplin.org] On
Behalf Of Barb Scott
Sent: Tuesday, February 28, 2012 4:20 PM
To: oplinlist at oplin.org; pubyac at lists.lis.illinois.edu
Subject: [OPLINLIST] Childhood eating disorder...

Okay, folks,here's a stumper for you....it certainly perplexed me.  
Had a patron in today looking for information on childhood eating disorder....specifically a disorder that is, as the father described it, "the I'm full button being
broken". He has a young son who evidentally had medical issues early on and was fed through a tube. As he describes it, the child now does not know the sensation of "being full" when eating regular food...will eat often to the point of passing out.  
Of course, we had nothing here, and mostly what I have found searching on-line are medical journals. Any wisdom as to websites or books that are not medical textbooks
that I could direct him to?  
I am not a doctor (nor do I play one on TV), but the description of binge eating disorder sounds closest to what he is describing. So does anyone out there know
of any books, etc. that I could direct this parent to?  
TIA!  
Barbara Scott, Children's Librarian 
Bucyrus Public Library 
200 East Mansfield Street 
Bucyrus, OH 44820 
419-562-7327 x 104 
www.childrensprogramming.blogspot.com 
Author of 1,000 Fingerplays and Action Rhymes: A Sourcebook and DVD 
www.neal-schuman.com/far 
Coming in 2012: The Holiday Handbook: 700+ Storytime Activities... 
www.neal-schuman.com/rtghs 

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